Every day is sort of different. I Still just sit around and direct everything I do. But there are spurts of enjoyment.

6am wake up to twitching and bedwetting

6:30 if it’s bowel day, insert supp (every other day), wait an hour, start going to the bathroom. Someone assists me and cleans it up. This process takes about an hour. That’s on a good day.

Around 8am I start to get up. That involves putting my condom catheter on, having someone put on my socks and put on my underwear, put on my pants, roll me back and forth a few times to do this, and to shove a sling under me. My ceiling lift is then lowered and hooked up to the sling. It’s a car engine hoist-type lift. I get picked up and then dropped into my power wheelchair. It takes between a half hour and an hour to get me into the wheelchair, depending on who’s doing it, and that’s without a shirt. And that’s not even including my shower routine, you know, the shower hour. In the last few months, that’s been once a week.

I just try and find some excitement in the day. I try not to think about the details of putting on my shirt, and sweater turn on toothbrush and somebody putting breakfast cereal on my lap, I try not tho think about those things, but about the fun stuff of the day, and what it takes to have fun.

I’ve run over and broken toys already. It kinda stresses me out.

I go to bed before Brandon, because putting me to bed is noisy and I don’t want to wake him up.

(ahhhhh, too tired to continue...)